There are many families in the Mid-Atlantic region, and across the country caring for a child with complex health care needs. Caring for someone 24 hours a day, seven days a week, over many years can put an immeasurable strain upon a family. While many willingly invest love, energy and care, life often becomes governed by the relentless timetable of medical needs. Relationships can suffer, careers may have to be abandoned, healthy brothers and sisters can feel left out and regular family activities and holidays happen rarely, if ever.
The medical systems remain complex and hard to understand. There are few if any good services that help already overburdened families navigate the web of medical care, which further stresses the family and places more barriers between the child and a typical life.
Some families who have cared for their child for many years are now experiencing serious grief as they face the loss of that child. Their needs are tremendous, and many families feel afraid and alone in their grief.
Connor’s House seeks to provide respite, care coordination and support services for families facing these types of complex challenges.